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New treatment - Lymphangitis Carcinomatosis

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I was recommended to see Prof Ho Gwo Fuang in UMMC / UMSC to get into his Hyperthermia program. So I went to see him, lucky me as I managed to schedule an appointment with a few days after calling in.   During this period, my breathing was really bad.  I can't walk fast, can't even talk properly without panting.   So when I saw him, I had to tell him about my history, showed him all my scans.  But I did it so badly, as I panting at every word I said.  He looked at my scans and me, and told me I need to be treated for Lymphangitis Carcinomatosis, which basically means cancer has invaded all of lymphatic vessels of my lungs.  He said if I don't treat it now, in a week's time, I won't be able to function without oxygen tank.  And my days are numbered. So yeah, bad news for me.   Azwat said, let's take a leap of faith and go with the Prof.  So I said ok Prof, let's do it.  Let's go with your plan.  He said, ok, chemo star...

Pink Superheroes

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October is Breast Cancer awareness month.  This year, I somehow signed up to participate in a parade by survivors.  For the parade, we were assigned to groups of 4 and have to choose a theme.  Our group chose Superheroes as our theme.  And we have to DIY our costumes and accessories.   Me DIY??? Thank God I have my super sister in law Azlin to the rescue. She's really good at this. So who did I dress up as?  I thought really hard - Supergirl? Batgirl? Black Widow? I didn't know how to make these costumes! Haha!  So, I decided to be Harley Quinn!  Her costume was easy enough - torn up tshirt & jeans, dirty leggings. I already have a blond wig somewhere, just need to add some colours to it. Just need to find a mallet or baseball bat.   So yeah! I found some cheap tshirt and short jeans in a bundle shop.  Azlin helped me (more like took charge coz I'm hopeless) with the tshirt & shorts dye, that was really fun. I splashed ...

My lungs

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Not so good news... I have difficulty in breathing.  I can't walk fast or get excited or talk too loud, or I will be panting.  Went for a Pet scan and lung biopsy.  Bloody cancer has now traveled there.   I am now given steroids and inhaler. Don't like this development, I can't do things I like such as running, cycling or even laugh out loud! And Kadcyla has to stop, and I start new chemo regime - Gemzar & Carboplatin.  And another 10 rounds of radiotherapy  Sigh....

Short trip to Cameron Highlands

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Managed squeeze in a short trip to Cameron Highlands.  I drove while Azwat cycled up. Crazy fella Enjoyed lots of strawberries, fresh cool air, scones, steamboat and a nice accommodation at the iconic Smokehouse Hotel.

Pandemic

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Oh boy, the pandemic really hit the world.  Covid-19 has totally changed the world. New experiences: Lock down - no leaving home, Azwat and I were stuck at home for months. Work from home - well, I'm used to this, as this was my work mode after chemo.  But this becomes worldwide!  Virtual events - no face to face events for now, so I had to get familiarized doing virtual events 100% home cooked food - I always cook, but with this lock down, we have to cook our own food at every meal for months. Poor Azwat had to endure my cooking hehehe! Talk shows - all my favourite talk shows like Trevor Noah, Stephen Colbert, James Corden were all done from their own home!   Electricity bills - OMG the increase in electricity bills was phenomenal, as we we home all day long! Netflix - it saved our lives.  can't imagine being stuck at home without it Internet - broadband in Malaysia sucks big time.  Paint by numbers - I took up painting to pass time.   Plan...

Info to keep

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Read this somewhere: Every person has cancer cells in the body. These cancer cells do not show up in the standard tests until they have multiplied to a few billion. When doctors tell cancer patients that there are no more cancer cells in their bodies after treatment, it just means the tests are unable to detect the cancer cells because they have not reached the detectable size. Cancer cells occur between 6 to more than 10 times in a person’s lifetime. When the person’s immune system is strong the cancer cells will be destroyed and prevented from multiplying and forming tumors. When a person has cancer it indicates the person has multiple nutritional deficiencies. These could be due to genetic, environmental, food and lifestyle factors. To overcome the multiple nutritional deficiencies, changing diet and including supplements will strengthen the immune system. Chemotherapy involves poisoning the rapidly-growing cancer cells and also destroys rapidly-growing healthy cells in the bone mar...

Qi Gong

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I must say, Qi Gong saved me.  Knowing I was diagnosed with cancer, my husband's old friend contacted him and wanted to meet me.  He has been practicing Qi Gong and wanted to teach me some moves and also gave me some energy.  When I heard that, it sounded like a hocus pocus, not something I would go for.  But my husband was adamant on meeting his friend, so I did. Turned out this man is a Godsend !  He came to our house and taught me some simple moves that can be done standing up and if I didn't have energy, I can even do it lying down.  Anyone can do it, it's really simple.   After learning the basics from him, I decided to learn from a master for self healing. And on a weekly basis I visit the Qi Gong master for in depth healing.  It has become a very important part of my life journey.  But what is Qi Gong really?  Qi Gong is an ancient system of self-healing that’s been around for 2,000 years. It’s a practice that’s meant to ...